Topics · 14 posts
Hard days & setbacks
Not every day was a step forward: an infection, transfusions, breathing scares, and surgery all set Brady back. These posts are honest about the hardest days and how we got through them.
yet another day in the NICU
After two weeks of good news, Brady's heart rate starts dipping and a limb swells, but we learn we can hold her tomorrow; she's 1 lb 8 oz.
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Good days and Bad days
After a great night at 2 lb 9 oz, Brady goes back on oxygen and turns blue during a feeding, and Nikkie calls it the worst moment of her life.
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Update
A brief prayer request: Brady is having a blood transfusion today.
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But He is Strong
Brady gets worse: more oxygen, signs of infection, antibiotics, and her first blood transfusion. Erik leans on "Jesus Loves Me."
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better news
Brady responds to her medicine; she's back in the critical section on Vapotherm until she's weaned, and we can finally sleep a little.
Getting better
Nikkie explains Brady's skin infection, cellulitis, which caused her breathing trouble; she's improving after what we call the worst days of our lives.
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"Be still and Know I'm Here"
Brady needs another transfusion, an IV in her head after 7 tries, and more oxygen; a friend's song reminds Nikkie that God is still there.
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Another Update
At two months Brady weighs 3 lb 15.9 oz, so we round up to 4, but her vaccinations bring apnea and put her back on oxygen.
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long road ahead of us
Two months in, Brady drools out her bottles, may need a stomach tube, and will need hernia surgery, but her oxygen monitor comes off.
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Day 87 (new video)
On day 87, a breathing scare sends Brady back to the NICU for an upper GI and head MRI while we wait to see if bottles or a g-tube get her home.
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back to the hospital we go...but not for long
Two and a half weeks after coming home, Brady has hernia repair surgery and is fussy but doing well, at about 6 lb 10 oz to 6 lb 14 oz.
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Poor little baby
A stomach bug, then a cough we get checked quickly because of RSV risk; it's an ear infection, and Brady actually weighs 11 lb 1 oz.
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Oh what a night
Brady's breathing turns labored, so we take shifts holding her all night; it's a respiratory infection, not RSV, and she's started sleeping in her crib.
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Another decade under the belt.
Nikkie recaps Brady's 2009 milestones, from 10 pounds to walking, and a 4-day November hospital stay for RSV and pneumonia.
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